Broadly Engaged Team Science in Clinical and Translational Research

Broadly Engaged Team Science in Clinical and Translational Research

Concannon, Thomas W.; Palm, Marisha E.; Lerner, Debra

Springer Nature Switzerland AG

02/2022

260

Dura

Inglês

9783030830274

15 a 20 dias

582

Descrição não disponível.
1. Introduction.- Part I Transforming Research with Broad Engagement.- 2. The Transformative Power of Broadly Engaged Team Science: A Moth-er's Quest to Understand PXE.- 3. Broadly Engaged Team Science in Neonatal Research.- 4. Patient Advocates in Cancer Care: A Rich Tradition and Evolving Role.- 5. National Kidney Foundation Patient Network.- 6. Broadly Engaged Team Science Comes to Life in a Design Lab.- 7. Tufts Center for the Study of Drug Development Employs Broadly Engaged Team Science to Explore the Challenges of Pharmaceutical Research and Development.- Part II. Integrating Communities and Stakeholders into Broadly Engaged Team Science.- 8. Social Movements and Stakeholder Engagement.- 9. A Basic Scientist's Journey: Engaging Public Stakeholders Through Civic Science.- 10. Lessons in Public Involvement from Across the Pond.- 11. Leveling the Playing Field for Community Stakeholders: Examining Practices to Improve Engagement and Address Power Dynamics.- 12. A Theory of Stakeholder-driven Community Diffusion.- 13. Monitoring and Evaluation of Stakeholder Engagement in Health Research.- Part III. Applying Broadly Engaged Team Science: Case Studies.- 14. Insiders and Outsiders: A Case Study of Fostering Research Partnerships between Academic Health Centers and Corrections Institutions.- 15. Responding to the Community: HOPE (Healthy Outcomes from Positive Experiences).- 16. Students as Key Collaborators in Tackling Early Stage Research Ideas.- 17. Engaging Stakeholders to Decrease Study Start-up Delays.- 18. Health Literacy and Broadly Engaged Team Science: How One Study Team Used Plain Language Principles to Share Findings with Affected Communities.- 19. Utilizing Patient Navigators to Promote Equitable and Accountable Research.- 20. Asian American Research in the Post-Atlanta Era: Driving Community-engaged Research That Is More Meaningful, Responsive, and Actionable for Local Communities.- 21. Stakeholder Engagement in Predictive Model Development for Clinical Decision Support.- Part IV. Creating an Institutional Environment of Support for Broadly Engaged Team Science.- 22. Research Administration Practices for Proposal Development and Post-Award Management of Stakeholders and Community Participants.- 23. Starting Off Right: Supporting Community Involvement in the Evaluation of Research Proposals.- 24. Role of Broadly Engaged Team Science in the Inclusion of Minority Populations as Research Participants and in All Roles on Research Teams.- 25. Rewarding Team Science in Tenure and Promotion Practices: An Operational Imperative for the Academic Research Enterprise of the 21st Century.- Epilogue.
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diversity;inclusion;research methods;research policy;inequality;sustainability;patient care;basic research;case studies;scientific partnership;health policy;social sciences;team building;best practices;policy implementation;evidence-based;patient network;minority populations;advocacy;social movements